Between 2019 and 2024, we have tested over 900 individuals in their thirties, who have collectively spent over 500,000 hours on tests and tasks. On December 30, 2023, the last testing day took place. Data collection in the lab, at home, and online has been very successful. In total, we conducted more than 2300 testing days and include over 700 complete datasets. Additionally, around 300 participants collected partial data. This study marks the next step in comprehending the human brain and its dynamic and individual functioning within its bio-social context. With great enthusiasm, the set-up of an accessible resource for the scientific community is drawing closer. We are very proud of and grateful to the recruitment team, research assistants, and data team, who made all of this possible!
After three successful preliminary data release rounds on a subset of the HBS cohort, we are hopeful that the full HBS dataset will be made available in 2024. Currently, we are actively processing all datasets. The date of the full HBS data release will be announced on this page.
3 successful preliminary data release rounds
In June 2023, the first preliminary data release round comprised data from the first 300 complete datasets, followed by the second preliminary data release round at the end of August 2023. The third preliminary data release in November 2023, offered data from the first 500 complete datasets. While the first two rounds were only open to researchers who were involved in the design and data collection of the Healthy Brain Study, this third round was open to all researchers of Radboud University, Radboudumc, and the MPI for Psycholinguistics.
Future perspective and full data release
In 2024 (exact date to be announced), the full HBS dataset will become available during the 4th round of the preliminary data release. An overview of the data that will become available for this round will be available when the release is announced. The currently available data can be found here (this link will be updated when the next release is announced).
Please read our protocol paper for more information and collaborations with the Healthy Brain Study consortium.
Data access procedure
Please read the bylaws for full context and procedures!
Step 1: Select the data you would like to request in the data table by checking the request check-boxes. We can only readily release data which has been cleaned, processed, uploaded, and complemented with metadata. If you request data which are not available yet, please keep in mind additional waiting time.
Step 2: Fill in the data request form.
Step 3: Your data request is reviewed by the HBS Data Access Committee (DAC) for general eligibility, consistency between research question and data request, and data privacy.
Step 4: Upon successful evaluation, the data transfer agreement is signed. Please note that preregistration of the research proposal is required before signing. We require a preregistration because it promotes transparency in science.
Step 5: Download the requested data from PEP (Polymorphic Encryption and Pseudonymisation), our data sharing repository, onto your Digital Research Environment (DRE), project drive or secure alternative processing environment (instructions on how to download the data will follow shortly). We strongly advise to use DRE whenever possible. Always check your data when receiving them and give us feedback if you detect any mistakes or inconsistencies!
Step 6: Publish your results and acknowledge the Healthy Brain Study.
Questions?
For questions or inquiries, please do not hesitate to contact hbs-data@radboudumc.nl.
Relevant documents (will be updated when the next data release is announced)
Bylaws version 2
Data request form version 3
Data table 500 participants version 1
Data transfer agreement version 3
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